Perceptions de pères vivant avec un fils ou une fille adulte ayant une déficience intellectuelle sur la transition de l'après-parents.

With the increase in life expectancy, many people with intellectual disabilities (ID) are living in the family home with their parents. This research focuses on the experience of 17 fathers of adults with ID. These fathers answered a questionnaire including open and closed questions. During the individual interview, fathers described their motivations to cohabit with their son or daughter, cohabitation benefits and constraints, housing options considered and planning for the future. Results indicate that fathers chose this cohabitation. However, they experience anxiety because they do not know who will support the adult with ID when they can no longer do so. Postparental planning considerations include legal concerns and informal discussions with siblings or the extended family. These results describe a complex parental situation in which there is interaction between their emotions, their attachment to the adult with ID and their previous experiences with residential, social or rehabilitation services.

Avec l'augmentation de la longévité, plusieurs personnes ayant une déficience intellectuelle (DI) vieillissent au domicile familial avec leurs parents. Cette recherche porte sur l'expérience de 17 pères d'adultes ayant une DI. Ces pères ont répondu à un questionnaire incluant des questions ouvertes et fermées en entrevue individuelle afin de décrire leurs motivations pour cohabiter avec leur fils ou leur fille ayant une DI, les bénéfices et contraintes de cette cohabitation, les services résidentiels futurs envisagés et la planification de « l'après-parents ¼. Les résultats indiquent que les pères ont choisi cette cohabitation. Ils éprouvent de l'anxiété, ignorant qui assumera le soutien auprès de l'adulte avec une DI lorsqu'ils ne pourront plus le faire. Leur planification de l'après-parents correspond à des démarches légales et à des conversations avec la fratrie ou la famille élargie. La discussion souligne la complexité de la situation où entrent en jeu les émotions des parents, leur attachement à l'adulte ayant une DI et les expériences antérieures avec les services résidentiels, sociaux ou de réadaptation.

'Cautiously optimistic': Older parent-carers of adults with intellectual disabilities - Responses to the Care Act 2014.

This article discusses potential opportunities for best practice in the United Kingdom that may be brought about by the Care Act (2014). Carers in the United Kingdom were given new rights within this legislation with a focus on needs led assessment. The underpinning philosophy of the Care Act is to streamline the previous legislation and offers a framework for carers and people in receipt of care, to enable a more personalized approach to care and support. Offering a discussion of likely opportunities brought about by provisions of the Care Act, this article draws on a small study involving older parent/carers of sons or daughters with intellectual disabilities. Exploring the extent to which such parents of adults with intellectual disabilities were aware of the details of this legislation and the potential impact it may have on their lives highlighted other significant areas, some of which are discussed below. Semi-structured interviews were conducted with five parents over the age of 60 of sons or daughters with intellectual disabilities in North West England. The study adds to the body of knowledge and understanding about parents of adults with intellectual disabilities and explores and provides a deeper understanding of parents' experiences of the implementation of this specific piece of legislation and their perception of the relevance of it to themselves. Findings include some awareness of the legislation and some feelings of optimism about its likely implications, although participants appeared less clear about the specificities and the impact of these upon them and/or their sons or daughters. Findings from the semi-structured interviews also showed parent's articulation of the extent of reciprocal care manifest between them and their son or daughter with an intellectual disability, as well as an awareness of the fragility of their own emotional well-being.

IN SEARCH OF A FATHER: LEGAL CHALLENGES SURROUNDING POSTHUMOUS PATERNITY TESTING.

This article interrogates the workings of the Human Tissue Act 2004, as it applies to paternity testing by DNA analysis after the death of the putative father. We use a case series methodology more usually seen in medical research, through which we present three real case studies involving posthumous paternity testing of retained tissue. We argue that the criminal offence in section 45 of the Human Tissue Act 2004, which is being used to regulate this activity, is inappropriate and inadequate to do so. The threat of the shadow of the criminal law is too blunt an instrument to address the subtleties of the issues that arise in the context of posthumous paternity testing. We call for reform of the Human Tissue Act 2004 and the creation of a specific exception to properly deal with requests of this nature.

Legislating for Filial Piety: An Indirect Approach to Promoting Family Support and Responsibility for Older People in Korea.

Although every culture follows its own indigenous elder care practices, Korea has retained a unique way of supporting elder parents, specifically, and older people in general. When the care of older people in Korea became significantly challenging, it was determined to launch a controversial law to promote the tradition of filial piety. The main content of the law consists of requiring the government to take action to encourage filial piety and to support those adult children who care for their parents. Although this legislation has the potential to promote the practice of filial piety, the nature of the law is largely rhetorical and symbolic rather than practical, and as a result, its workability and efficiency are limited.

The demented patient who declines to be dialyzed and the unhappy armed police officer son: what should be done?

Dialysis personnel are responsible for ensuring that patients' rights and physical safety are protected in dialysis centers. Treatment of patients with cognitive impairment, including patients with dementia, presents special challenges. These patients may attempt to pull out their dialysis needles during treatment, potentially endangering themselves, dialysis center personnel, and other patients. Such patients may also compromise the care of other patients in the center by upsetting them and requiring a disproportionate amount of staff attention during treatment. Dialysis centers have learned to require families of such patients to provide a sitter to ensure that the patient remains safe during the dialysis treatment; however, some patients may exhibit unsafe behaviors despite a sitter, and not all families are willing to provide a sitter. In some instances, family members respond to the stress of a loved one who is unsafe on dialysis by being verbally or physically abusive to dialysis staff. This article presents a case in which the family member was a police officer who was not only verbally and physically intimidating to the staff but also insisted on bringing his police service weapon into the dialysis center. It describes the psychosocial, ethical, and legal responses to a family member who is disrupting what should be a calm environment in the dialysis center and recommends that dialysis centers proactively develop policies concerning safety for patients, family members, and other visitors that make no exceptions. The case also highlights the importance of adopting a no weapons policy and posting and enforcing a no weapons sign.